Maren Denison, third-year student at the University of Iowa, was in sixth grade when she found out her lung function had dropped to 60 percent as half of her lung had collapsed and was scarred shut.
When he was about 14, Pete Proimos learned a soul-crushing statistic about the cystic fibrosis he’d endured since birth: Patients back then didn’t live much past high school. “Should I go to college?” ...
As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
One of this year's coveted Lasker Awards went to three scientists who helped invent a life-saving treatment for cystic ...
Patients who live with CF are faced with a variety of health and lifestyle challenges. When might be the best time to talk ...
Non-profit patient advocacy groups, patient groups and others in various parts of the world have come together to launch a community-run buyers' club to access a new generic version of a lifesaving ...
Cystic fibrosis (CF) therapeutics refer to treatments designed to manage and alleviate the symptoms of cystic fibrosis, a ...
To topple access barriers to Vertex Pharmaceuticals’ potentially lifesaving, yet often out-of-reach cystic fibrosis therapy ...