74K views · 505 reactions | Children with CNL2 Batten Disease are not...
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74K views · 505 reactions | Children with CNL2 Batten Disease are not...
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FacebookOllie's Army Battling Against Battens
A new children's book is helping families talk about rare, fatal Batten disease
A new children's book is helping families talk about rare, fatal Batte…
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ABC NewsKathleen Calderwood
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FacebookOllie's Army Battling Against Battens
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Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta siblings
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Feeling incredbly loved by all those around us 🧡Here are just a few pictures we managed to caputure on Batten Disease Awareness Day 2025. A massive thank you to everyone who got involved and helped to raise awareness of such a rare yet devastating condtion. A huge thank you especially to our local community for once again turning our village orange, by doing this we know that questions will be asked as to why everywhere is decorated orange and this in turn will start converations regarding Batt
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Feeling incredbly loved by all those around us 🧡Here are just a few pict…
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FacebookOllie's Army Battling Against Battens
6.8K views · 112 reactions | Today we met a parent who received the...
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FacebookOllie's Army Battling Against Battens
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FacebookOllie's Army Battling Against Battens
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