Teen talks about living with Treacher Collins syndrome
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Teen talks about living with Treacher Collins syndrome
Nov 15, 2017
ABC7 ChicagoKaren Jordan
We're twins with Treacher Collins - and we'll never get surgery 💜 #fbreels #shakemybeauty #twins #twinsisters #treachercollins #treachercollinssyndrome | Shake My Beauty
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People Living with Treacher Collins Syndrome | Ask Me Anything
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Good News! ❤️ Seven-year-old William, who was born with severe Treacher Collins syndrome, has spent his whole life unable to breathe without a tube in his neck. He needed constant supervision and missed out on many simple childhood experiences. But after a life-changing surgery that rebuilt his jaw using bone from his ribs, William can now breathe and eat independently — and he’s finally able to have something he’s always dreamed of… his first sleepover. #fyp #goodnews #hope #UK #science
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Good News! ❤️ Seven-year-old William, who was born with sever…
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Treacher Collins syndrome is a rare genetic disorder affecting facial development, characterized by underdeveloped cheekbones, jaw, and ears. It can cause breathing, hearing, and vision difficulties, as well as distinctive facial features. Treatment often involves surgery, speech therapy, and multidisciplinary care to address various needs. #TreacherCollinsSyndrome #RareDiseaseAwareness #GeneticDisorders #FacialDifferences #CraniofacialAwareness
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