Registration is open for the 2026 Angelman Syndrome foundation family conference! Go to asfconference.org#angelman #angelmansyndrome #asf #soar
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Registration is open for the 2026 Angelman Syndrome foundation f…
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New ASF Podcast Episode: Epilepsy in Angelman Syndrome. Listen to this recording from the 2024 ASF Family Conference to gain valuable knowledge and strategies to manage epilepsy effectively. Dr. Mark Nespeca, Dr. Ron Thibert, and Dr. Robert Carson discuss identifying seizures, treatment options, seizure preparedness, non-convulsive status epilepticus (NCSE), and non-epileptic myoclonus (NEM)/tremors. Listen on Spotify, Apple Podcasts and YouTube Podcasts. | Angelman Syndrome Foundation
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New ASF Podcast Episode: Epilepsy in Angelman Syndrome. Listen to …
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New ASF Podcast Episode! In this recording from the ASF Family Conference, Rebecca Burdine, PhD covers the genetics of Angelman syndrome and why better therapeutics are possible. After this listen, you'll be able to add new terms to your glossary, like UBE3A, genotype, phenotype, antisense transcript, paternal imprinting, ubiquitin pathway, and more! Listen on Spotify, Apple Podcasts and YouTube Podcasts. #angelmansyndrome #angelmansyndromefoundation #angelmanresources #asfpodcast | Angelman Syn
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New ASF Podcast Episode! In this recording from the ASF Family Co…
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1 MONTH til the ASF Walk T-shirt Deadline! Secure your ASF Walk retro tee by registering now. The throwback design pays homage to the inaugural ASF Walk shirts from 1999. Don’t miss out on this nostalgic piece of Angelman history. 🤩 46 physical locations & virtual options Register now: www.angelman.org/walk #walkforangelman | Angelman Syndrome Foundation
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1 MONTH til the ASF Walk T-shirt Deadline! Secure your ASF Walk r…
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New episode of the ASF Podcast. CEO Amanda Moore is joined by Bryan LaScala, CEO of the NAPA Center. Bryan shares the inspiring story of how his mother’s determination to help her son led to the founding of the therapy center. Bryan dives into the benefits of intensive therapy, the individualized approach at NAPA, and how the center supports families navigating complex care journeys. Listen on Spotify, Apple Podcasts and YouTube Podcasts. | Angelman Syndrome Foundation
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New episode of the ASF Podcast. CEO Amanda Moore is joined by B…
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New episode of the ASF Podcast! The most watched recording from the 2024 ASF Family Conference was the Behavior and Anxiety in AS session. Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, discussed evaluation, management, and recommended treatment options for unique and challenging behaviors. Now, you can listen to the session on the latest episode of the ASF Podcast. Available on Spotify, Apple Podcasts and YouTube Podcasts. #ang
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New episode of the ASF Podcast! The most watched recording from …
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ASF Clinics - Angelman Syndrome Foundation
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